Interview with Science & Justice appears in the Danish Daily Information

Last June (2013), members of the Science & Justice Research Center were interviewed by former UCSC EAP (Education Abroad Program) student Bue Thastum.  While the original interview appeared in the Danish Daily Information, below is the translated article.

 

Should research create a better world?

Science can have other forms of social relevance than just economic. At the University of California Santa Cruz a young research center is trying to create interdisciplinary dialogues on how to practice science and engineering in ways that contribute to a more just world.

The debate regarding the role of research in society has often stood between two different positions. On the one hand voices that speak of the importance of maintaining independent basic research, on the other hand, those who want research that’s more directly connected to society. In the Danish debate the latter, however, has typically been in a rather narrow economic sense – emblematic summarized in former Minister of Science Helge Sander’s (V) slogan of the movement from research to invoice. A political ambition that, as it was recently demonstrated in a report from the think tank DEA, didn’t actually turn out as hoped anyway.

But the way science relates to society can also be on other broader levels than merely economy. An example is the young research center Science and Justice at the University of California Santa Cruz who, based on the fact that science and engineering plays a huge role in shaping our lives and society, are working to create cross-disciplinary conversations about how it can be done in a way that contributes to the creation of a better, more just world.

The group, which has existed since 2006 but only formally became a research center last year, is particularly unique in the way it manages to bring together students and researchers across the gap between the natural sciences, social sciences and humanities in its seminars and educational programs.

More than fraud

The center is housed in two humbly furnished rooms on the campus of the university. In one of those, assistant director Jake Metcalf bids welcome and explains that one of the intellectual approaches of the center is a discussion of what research ethics means.

“The understanding of what it means to practice science ethically has been too shallow,” Jake Metcalf says.

He has a PhD in philosophy himself and has amongst other things done research on applied ethics in the life sciences. He believes that part of the problem is the way science students are being educated.

“Most of the science ethics teaching is based on a model named Responsible Conduct of Research,” Metcalf explains.

Academic integrity, avoidance of plagiarism and informed consent from research subjects are typical topics. All this is of course essential, he admits:

“But one of the premises for Science and Justice is that this is not enough. It does not tell you much about the social good that can be achieved by doing science in one way or the other. So we try to create a space to think about what ethics may be beyond the Responsible Conduct of Research.”

One of the ways that space more specifically takes shape is in form of the events the group is organizing, in which they try to get speakers from different disciplines to come together around a common issue, and hopefully bring perspectives that can mutually enrich one another.

Anxiety of politics

Shortly before the summer holidays, for example, there is an event on airborne pesticide drifts and social justice. It’s Tuesday afternoon in one of the new glass-clad buildings in the scientific part of the campus. On the wall hangs a poster with the human genome, and in two rows around a U-formation of tables an audience counting anthropologists as well molecular biologists is seated.

One speaker is an environmental sociologist and has studied bureaucratic and political processes surrounding the regulation of pesticides in the United States, another is a representative of an NGO that teaches poor residents from rural areas to document pesticide drifts from nearby farms, and a third is the biologist Tyrone Hayes, who discovered how the pesticide Atrazine creates hormonal disorders in frogs and subsequently, under great media attention, has thrown himself into a prolonged and spectacular public campaign against the company that manufactures the pesticide.

A central theme in both the presentations and the subsequent discussion is the role scientific evidence plays in facilitating political change.

The NGO representative explains how being able to use scientifically robust methods has helped lay people to push for political change. Conversely, the two other speakers describe a widespread culture amongst scientist of not being interested in engaging in political processes. As the company behind Atrazine tried to discredit Hayes, he found about 60 other scientists in the world, all of which dealt with the effects of Atrazine, but when the US Environmental Protection Agency held a hearing on the pesticide, no one showed up.

Apart from the seminars, Science and Justice’s main activity right now is the training program for graduate students.

The program is being offered across all the divisions of the university and is thus concretely putting future physicists, sociologists, engineers and political scientists in the same room. The background for this is that justice, as Science and Justice understands it, is not something you can define once and for all, and hence not necessarily something that can be kept within the boundaries of a single discipline either.

Kate Richerson is a PhD student in Biology and one of the students who has completed the program. She says that it especially has given her a sense of the complexity of the social life scientific studies gets after having been completed. Many scientists have good intentions, but they lack that understanding if they really want to create a better world.

“There is a tendency that it just gets taken for granted that science can help,” says Kate Richerson, “but the work you’re doing often gets to have its own life, when you put it out into the world.”

A life that’s exactly influenced by economy, social relations or culture, and thus one that other disciplines could help provide a more nuanced image of.

Interdisciplinary diplomats

The hope of the program is that the students by gaining an understanding of each other’s language, and by building up a sense of comfort in talking together across disciplinary boundaries, eventually will be better to see possibilities for collaboration.

But it’s not the ambition of Science and Justice to get the students to put their professional identities behind them, says Andrew Mathews, who until the summer was the director of the center.

“It is about building the ability to become diplomats across disciplinary differences,” Andrew Mathews says.

“I actually think ‘interdisciplinary’ is a meaningless word. Everyone says they are, but what does it mean? Instead, it is about providing opportunity for people from different disciplines to have conversations about things that matter to them. That’s our goal. And from there, maybe new research questions can emerge. ”

 

Thastum, Bue. “Should Research Create a Better World.” Danish Daily Information. Sept. 2013. n. pag. Web. 26 Sept. 2013.

Jenny Reardon, Director of the SJRC, gives lecture in Clarke Forum Meanings of Race Series at Dickinson College

The opening decade of this millennium witnessed genome scientists, policy makers, critical race theorists and world leaders proclaiming the anti-racist democratic potential of human genomics. These views stand in stark contrast to the 1990s concern that genomics might create new forms of racism. This lecture explores this shift, both why it happened and what it reveals about emerging challenges for understanding issues of race and racism in the genomic age.

This event is sponsored by the Clarke Forum for Contemporary Issues and co-sponsored by the Departments of American Studies, Anthropology, and Spanish & Portuguese. This program is also part of the Clarke Forum’s semester theme, The Meanings of Race.

Video of lecture  http://clarke.dickinson.edu/jenny-reardon/

UCSC Science and Justice Program Receives National Attention

UCSC Science and Justice Program Receives National Attention
By Kara Guzman

Santa Cruz Sentinel

POSTED: 08/20/2013 05:53:05 PM PDT

SANTA CRUZ — An interdisciplinary team of professors and graduate students from UC Santa Cruz’s Science & Justice Training Program have been recognized on the national stage for their work to integrate ethical training into scientific fields.

The team recently published an article in Public Library of Science Biology, a national peer-reviewed science journal, about the need to create institutional space for the exploration of the links between science and questions of ethics and justice, and how they were able to achieve that at UCSC.

The training program, which teaches both science and humanities graduate students to integrate ethical questions into their work, is the first of its kind, according to co-director Jenny Reardon. One of the program’s goals is to inspire the growth of this type of work on a national level, said Reardon.

“We live in a world where science and technology are a part of everybody’s lives,” said Reardon, who is an associate professor in sociology and faculty affiliate in UCSC’s Center for Biomolecular Science and Engineering. “What we wanted to do was build a space where scientists and engineers could come together with social scientists and humanists around areas of common concern.”

Reardon listed topics such as dam construction, fish stock management and genomics as areas where people beyond just scientists are needed to answer broader political and justice questions.

A subtle yet significant shift has occurred in the principles of the National Science Foundation, a federal agency that funds approximately 20 percent of federally supported university research, and the agency now seeks to fund research that explicitly engages the public and benefits society, according to the article.

This shift has resulted in an effort at the national level to increase science ethics education, according to assistant program director Jake Metcalf. Traditionally science ethics education is built around responsible conduct of research, or “don’t cheat, don’t steal, don’t lie,” said Metcalf.

“We’re trying to expand that to say we can develop better forms of knowledge when we actually have space and funding and time to recognize the interdisciplinary nature of the problems that scientists and engineers encounter,” said Metcalf.

Along with coursework that teaches graduate students how to identify intersections between science and ethics, such as in genomics or climate change, the program offers a working group and research center, which provide an institutionalized space to explore these intersections.

Science & Justice fellow Tiffany Wise-West, a civil engineer who is completing a Ph.D. in environmental studies, said that the program helped her think beyond just engineering, and brought the social implications of her work to the foreground.

“It’s added a new dimension,” said Wise-West. “I had not thought in that way before.”

A key part of the program is encouraging scientists to step away from the “publish or perish” pressure and take the time to reflect on these broader issues. Reardon said she sees a long-standing competitive culture within the scientific community that encourages sacrificing personal time to quickly churn out scholarly articles.

“That’s why I think these questions of justice are important,” said Reardon. “It encourages us to think about what life is about, what is the good life and what is the place of knowledge and knowledge production.”

Science and Justice Training Program explores ethics of scientific research

Science and Justice Training Program explores ethics of scientific research

Founders and participants outline program in ‘PLOS Biology’

By Guy Lasnier

Jenny Reardon is an associate professor of sociology and co-director of the Science and Justice Training Program. Co-director Karen Barad is professor of feminist studies and history of consciousness.

A subtle but significant shift in how national science policy makers regard the outcomes of scientific research has created opportunities for innovative programs such as the Science and Justice Training Program (SJTP) at UC Santa Cruz.

The interdisciplinary program, within UCSC’s Science and Justice Research Center, trains graduate students to explore the effects and impacts of their research on society. Writing recently in a scientific journal, members of the training program, co-directed by Jenny Reardon, associate professor of sociology, and Karen Barad, professor of feminist studies, outline the UCSC effort that was founded in 2010 with a National Science Foundation grant.

The article “Experiments in Collaboration: Interdisciplinary Graduate Education in Science and Justice” appears on the community page of the July 30 issue of PLOS Biology.

“In a world increasingly shaped by science and technology, the SJTP aims to offer one pathway for science and engineering to connect to social issues and public concerns in a more practical, substantive, and thoughtful way,” the authors write.

Although policy changes over the past 20 years have led to an increased awareness of the impact of science on society, little direction is provided on how to proceed. That has created “an unexpected and underexploited benefit,” the authors write. “Where there is a mandate with little guidance, there is also an opportunity to innovate.”

At UCSC that means increased ethics education requirements for graduate students and a training program to deliver it. It means scientists and engineers working with colleagues in the humanities, arts, and social sciences.

As an example, the authors cite two physics students working on solar greenhouse technology for industrial applications. They had hoped their technology also would be useful to and embraced by small-scale organic farmers.

However, after interviewing farmers using techniques learned in an SJTP research methods seminar, they learned the farmers wanted nothing to do with high-tech approaches. This prompted the researchers to rethink who might benefit from their work.

The goal is “not to turn scientists into social scientists or humanities scholars or vice versa,” the authors write. “Rather, it is to create opportunities for graduate students and other SJTP members to gather around common objects and concerns (e.g., a greenhouse, climate change, or the use of racial categories in biomedical research.”

Also contributing to the article were Jacob Metcalf, a postdoctoral fellow for the training program; along with graduate student fellows Ian Carbone, Martha Kenney, Jennifer Liss Ohayon, Derek Padilla, Miriam Olivera, Kate Richerson, and Tiffany Wise-West.

Andrew Mathews co-authors article on the contributions of anthropology to understanding climate change

SJRC Director Andrew Mathews contributed to a recently published Perspectives piece in Nature Climate Change (pdf here) detailing how anthropologists can contribute to understanding the social and political dynamics of climate change. In this piece, Barnes et al. identify three types of insights anthropologists are well suited to provide.

First, the discipline draws attention to the cultural values and political relations that shape climate-related knowledge creation and interpretation and that form the basis of responses to continuing environmental changes. These insights come from the in-depth fieldwork that has long been the hallmark of anthropology. The second contribution is an awareness of the historical context underpinning contemporary climate debates — a result of archaeologists’ and environmental anthro- pologists’ interest in the history of society–environment interactions. The third is anthropology’s broad, holistic view of human and natural systems, which highlights the multiple cultural, social, political and economic changes that take place in our societies. Societal dynamics, as drivers of change, always interact with, and often outweigh, climate change — an issue that needs recognition for the success of public policies.

The authors note the challenges of interdisciplinary collaboration that Science & Justice has also worked to address. Varied temporal and geographic scales, differing approaches to qualitative and quantitative work, and contrasting commitments of the values of specificity and generalization for understanding phenomena can sometimes put social and natural sciences at cross purposes. However, when gathered around shared and pressing problems, the friction between disciplines can be made productive rather than detrimental or competitive. They write,

Ever more serious challenges to scientific understandings of climate change and policy responses — in both domestic and international political arenas — make the climate science and policy community more open to inputs from the social sciences. This Perspective argues that anthropology could play a central role in this, by offering methods to access the social, cultural and political processes that shape climate debates. Just as anthropologists can learn from climate science about the changing environmental conditions we live in, so too can climate scientists learn from anthropological research.

Science & Justice aims to foster just such cross-disciplinary collaboration and literacy, bringing together multiple forms of expertise to address major problems in contemporary science and technology.

S&J Training Program Fellow joins delegation in DC to advocate for more graduate training funding

SJTP Fellow and Environmental Studies doctoral student Tiffany Wise-West filed this report from a lobbying trip to Washington, DC with the “UC in DC” program. The statements made in this piece are her own opinions and not those of any UC-affiliated advocacy group.

In late May, 2013 a delegation from UCSC joined other UC campus delegations for UC in DC day, advocating to Congress for strong and sustained federal funding of graduate research and education. Over 26,000 graduate researchers are partially supported by the $3.1 billion in federal research funding annually, representing two-thirds of total research funding awarded to UCs each year. With over 7% of the nation’s PhDs being awarded from the UC system, UC leads the way in building the intellectual capital necessary to fill the 2.6 million jobs in California projected to require advanced degree by year 2020.

The UCSC delegation meets with Representative Sam Farr (CA-20th District) to discuss the consequences of budget cuts on graduate student training.

Graduate training, long a focal area of the Science and Justice Research Center, will be impacted by cuts to federal discretionary funding in the next fiscal year as a result of the sequestration mechanism put into law by the Budget Control Act of 2011. Additional discretionary cuts to research, education, and health programs will be accomplished in future years by decreasing the total funds available for annual appropriations. Without a change to or repeal of the sequestration law, the following impacts to graduate education will go into effect:

 · Deep cuts through year 2021 to key agencies funding graduate research opportunities such as the National Institutes of Health, National Science Foundation, USDA, NASA, Department of Defense, and others.

· Reductions in student aid support will occur as the number of Pell Grants awarded decrease through year 2021 and interest rates for new federal students loans could increase from 3.4 to 6.8% after July 2013.

Obviously failure to “build the brain trust” has the potential to stifle technological innovation and could be economically damaging for the State. Chancellor Blumenthal, in his Open Forum piece in the May 9, 2013 edition of the San Francisco Chronicle, frames this issue in terms of UCSC’s cancer genome research and asks how we, as a society, cannot afford this research that is so clearly in the public’s interest. Thus, crucial social justice questions are also associated with the current funding situation. Societal human health impacts aside, the inability to maintain or increase funding to graduate programs and grant-making agencies will have dire impacts on prospective graduate students from disadvantaged backgrounds or communities with respect to affordability and accessibility of healthcare.

Moreover, as Senator Harkin’s (D-Iowa) Education Policy Advisor pointed out, the Senator believes that education should never be treated as a discretionary expense but rather always speaks of it in terms of an investment in a self-perpetuating source of innovation, an economic driver and equalizer. As long as Congress thinks of educational funding as an “expense” vs. an “investment” and continues to make choices that prohibit pathways to advanced degrees, generations of Americans may accept the notion that advanced degrees are simply “out of reach” and be dissuaded from pursuing them.

So, what are our options? Outside of aggressive advocacy with Congress to improve the situation through legislative means, UC delegates informed Senator Feinstein (D-CA) that UC is working to enhance early and robust alumni contribution campaigns and foster public-private partnerships in research funding as a means to deal with continual uncertainty and reductions in funding. While these actions can make significant contributions, they do not begin to reach the order of magnitude required to offset the divestment of federal funding in graduate research and education. Congressional representatives from districts in which UCSC is located all explicitly support UC’s graduate research funding agenda. But with such a divided Congress, it is unlikely that legislative action will succeed in maintaining or increasing funding levels.

The next opportunity to weigh in on this issue is at the state level by contacting your legislator to support the increases proposed for UC in Governor Brown’s proposed, revised state budget that was released on May 14, 2013 and will be voted on by the legislature on June 14, 2013.

 

 

Andrew Mathews receives the Harold & Margaret Sprout Award for recent book

Andrew S. Mathews, Director of the Science & Justice Research Center and Associate Professor of Anthropology, received the Harold and Margaret Sprout Award  from the International Studies Association’s Environment Section for his 2011 book Instituting Nature: Authority, Expertise, and Power in Mexican Forests (MIT Press). The Harold and Margaret Sprout Award recognizes the best book in the study of international environmental problems in the preceding two years. Mathew’s book traces the hundred year history of how the science of forestry arrived in the forests of Mexico and was transformed by indigenous communities who live and work in forests.

Jenny Reardon’s op-ed sparks conversation about medical and genetic privacy

Lung tissue samples taken from the body of a soldier who died of influenza in 1918 are pictured in an undated photo. Credit: Armed Forces Institute Of Pathol, NYT

SJRC Co-Director Jenny Reardon published an Op-Ed in the San Francisco Chronicle on March 2, 2013, “Should patients understand that they are research subjects?” In the article she recounts visiting a physician at UC San Francisco and not being able to parse the standard informed consent to having tissues and/or medical data used anonymously in medical research. At the heart of problem is a confusing mix of U.S. case law that denies ownership over one’s bodily tissues once they have left one’s body, medical privacy standards that require providers and researchers to inform you that they may use the tissues for research without directly requesting permission, and the speed at which medical advances are occurring. Given these conditions, it is actually imposible to know what one is consenting to when one signs these ubiquitous forms, making that ‘consent’ tenuous at best. Reardon, whose research examines the social, ethical political dynamics of biomedicine and genomics, notes that even experts like her are in the dark about how their tissues might be used in the near future, and recent research has shown that while researchers may aspire to keeping tissues and data anonymous it is no longer technically feasible.

I have spent two decades studying this minefield, and even I had a hard time making sense of what it might mean for these researchers to have access to my samples. For example, UCSF would be required by law to make my samples “anonymous,” yet research published in Science the day of my visit revealed that even anonymous samples can be reidentified. Does this mean that information gained from my samples might be linked back to me?

Reardon cites recent developments in patient consent at the University of Washington medical centers as a model for UCSF and other providers to adopt. At the University of Washington, patients are able to opt out of research without their physicians knowing, and thus not feel as if they are risking their access to care. Additionally, Reardon supports giving patients more rights to affirmatively opt in to research whenever their tissues or data is desired by researchers.

The San Francisco Chronicle editorial board also published an editorial in support of Reardon’s proposal. The editors suggest that as the US Department of Health and Human Services revises its standards for medical consent, they should keep these principles in mind:

— Patients may not have legal “property,” but they still have rights. Regulators should err on the side of more patient disclosure, not less.

— Compensation is going to be a big question going forward, but it doesn’t have to be monetary. If there’s no longer a way to provide patients with anonymity, will they have free or reasonably priced access to medical developments that come about as a result of their cells or DNA?

— Standardized disclosures should be encouraged throughout the industry. Different institutions have widely varying policies. Patients don’t deserve to be confused.

In response to these two pieces, UCSF’s Elizabeth A. Boyd, associate vice chancellor for ethics and compliance, and Daniel Dohan, associate professor of health policy and social medicine, noted that the success of medical research rests on relationships of trust between physicians, researchers and patients. The development of personalized medicine, which promises to revolutionize health care by tailoring treatments to individuals, will require willingness on the part of patients to provide samples for research and testing. Boyd and Dohan note that UCSF supports revising consent standards, and cite the recent creati0n of EngageUC, an initiative on the part of UC physicians and faculty to develop new comprehensive guidelines.

We want to develop a consent process and a set of policies that will help ensure that all patients – whether they have volunteered for specific research, are donating leftover tumor samples, or are being admitted to the hospital for care – truly understand what information may be gleaned from their samples, how that information will be used, whom it will be shared with, and what privacy controls can – and cannot – be guaranteed.

Reardon and the rest of the UCSC Science & Justice Research Center will continue to contribute to these conversations.

 

Jenny Reardon Awarded Brocher Foundation Residency

Jenny Reardon, Associate Professor of Sociology, Founder and Co-Director of the Science & Justice Research Center at the University of California, Santa Cruz was awarded a Residency with The Brocher Foundation to write her upcoming book The Post-Genomic Condition: Ethics, Justice and Knowledge After the Genome.

The Brocher Foundation is a Swiss non profit law Foundation offering visiting researchers the opportunity to stay at the Brocher Centre in a peaceful park on shores of Lake Geneva, to write a book – articles – an essay or a PhD thesis. The visiting positions are a unique occasion to meet other researchers from different disciplines and countries as well as experts from numerous International Organizations & Non Gouvernemental Organizations based in Geneva such as WHO, WTO, WIPO, UNHCR, ILO, WMA, ICRC.

Since 2007 the Brocher Centre has hosted more than a hundred junior and senior researchers from all around the world for stays ranging from one to six months.

Residencies with the Brocher Centre give researchers (PhD students to Professors) the opportunity to work on projects on the ethical, legal and social implications for humankind of recent medical research and new technologies.

 

Informational meeting for new cohort of Science & Justice Graduate Training Program

INFORMATIONAL MEETING: Wednesday March 6 2013, 12:30-2:00PM, at the Baytree Conference Center. Lunch will be provided.

SPRING 2013 COURSE: Science & Justice: Experiments in Collaboration (SOCY/BME/FMST 268A and ANTH 267), Prof. Andrew Mathews, Thursdays 9-12:00

We are pleased to announce new opportunities for graduate students to join our NSF-funded Science & Justice Training Program. The SJTP brings together students and faculty from across all departments and divisions on campus to develop innovative research at the intersections of science and society. Students will receive training and mentorship in interdisciplinary research methods and develop collaborative research projects. The spring course, Science & Justice: Experiments in Collaboration, will be the first step in a (pending) Graduate Certificate Program that will provide students with a number of opportunities for research funding, planning and hosting colloquia related to their research, training in writing for interdisciplinary academic and non-academic audiences and participating in other NSF-sponsored projects.

Enrollment in the course is required for participating in the Training Program. Attending the informational meeting is strongly encouraged, but not required.

Past collaborative research projects have included:

  • Physicists working with small scale farmers to develop solar greenhouses scaled to local farming needs
  • Colloquia about the social and political consequences of scientific uncertainty in climate change research
  • Examining how art can empower food system justice movements
  • Working with local publics to improve African fishery science

Prior SJTP Fellows have come from the following departments: Philosophy, Physics, Ecology and Evolutionary Biology, Environmental Studies, History of Consciousness, Digital Arts and New Media, Sociology, Earth and Planetary Sciences, Anthropology, and Politics.

Click there to download a flyer for this event.