April 20, 2017 | Data Under Threat: Rescuing Environmental Data in the Trump Era

Thursday, April 20, Noon-1pm
2nd Floor Instruction & Outreach Alcove
McHenry Library

In recognition of Endangered Data Week, Dr. Lindsey Dillon will discuss her recent experience as a coordinator of a network of academics and non-profits monitoring potential threats to federal environmental and energy policy data at the onset of the Trump administration.

Discussion will follow the presentation. Bring your lunch, questions, observations and experiences. Learn about data rescue efforts such as the Environmental Data & Governance Initiative (EDGI), the End of Term Web Archive, #DataRescue, DataRefuge, DataLumos, and Open Access Week.

Dr. Dillon is an Assistant Professor of Sociology at UCSC where she is affiliated with the Environmental Studies Department and the Science & Justice Research Center. She is also chair of the Environmental Data & Governance Initiative (EDGI), “an international network of academics and non-profits addressing potential threats to federal environmental and energy policy, and to the scientific research infrastructure built to investigate, inform, and enforce.”

Endangered Data Week (April 17-21, 2017) is a new, nationwide effort to raise awareness of threats to publicly available data.

April 25, 2017 | Online Film Screening: The State of Eugenics

Tuesday, April 25 at 3:30 PST
What is the legacy of government sponsored eugenics programs? Learn more and join the discussion following a special screening of THE STATE OF EUGENICS on Tuesday, April 25 at 3:30pm PT presented by Facing History and Ourselves and Reel South.

Between 1933 and 1974, the state of North Carolina ran one of the most aggressive eugenics programs, sterilizing more than 7,600 men, women and children. This film follows the journey of survivors, legislators and journalists who insist the state confront its role in the tragic, forced sterilization of thousands of Americans thought to have “undesirable” genetics.

Duration: 90 minutes

More details are at http://bit.ly/tsoe2017
Promotional Video: https://vimeo.com/195666167

Further Reading:

2017 Los Angeles Times Editorial: California needs to do more than apologize to people it sterilized

2016 PBS: Unwanted Sterilization and Eugenics Programs in the United States

2014 Center for Investigative Reporting: Female prison inmates sterilized illegally, California audit confirms

2014 Press Enterprise: Female inmates, some in Chino, unlawfully sterilized

2014 California State AUDIT: Sterilization of Female Inmates Some Inmates Were Sterilized Unlawfully, and Safeguards Designed to Limit Occurrences of the Procedure Failed

2013 Center for Investigative Reporting: Female inmates sterilized in California prisons without approval

2013 Center for Investigative Reporting Video: Sterilized Behind Bars

 

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Jenny Reardon receives Humboldt Foundation award

(Originally posted on Sociology@UCSC)

Jenny Reardon, professor of sociology and director of the Science & Justice Research Center at UC Santa Cruz, is the winner of the 2017 Friedrich Wilhelm Bessel Research Award.

The award recognizes scholars who have earned lifetime achievements in research. In addition, award recipients are invited to spend a year collaborating with specialist colleagues in Germany to carry out their proposed research projects.

The project Reardon and her collaborators will embark on will explore how the rise of big data’ is changing interpretive practices in the life sciences and life scientists’ understandings of and relationships to life.  While centered on the life sciences, and in particular on genomics, the research aims to produce insights about how the rise of informatics and big data are changing what it means and entails to produce knowledge across the natural and social sciences, and how those changes also entail shifts in what it means to act in an ethical and democratic manner.

The bi-national collaboration will allow for historical and comparative studies that promise novel insights into these fundamental processes. In the United States, the norm of openness powerfully shapes practices of interpreting genomes. In Germany, the privacy of genetic and genomic data still is considered paramount, although under mounting pressure. The study will investigate how different legal and scientific approaches to the management and governance of genomic data create different practices of interpretation that entail different conceptions of knowledge and justice.

Veronika Lipphardt, Reardon’s collaborator at the University of Freiburg, notes the timeliness of the research. “German politicians are currently discussing whether or not the German Law should allow for DNA Phenotyping and the determination of biogeographical ancestry in cri­mi­nal investigation”, she says. “Interpreting the results will be a major challenge for foren­sicists, investigators and judges.” Lipphardt belongs to a small group of scholars invited to a central expert hearing by the State Department of Justice.

Reardon plans to disseminate the research through published articles, public talks, and online media.

The Humboldt Foundation was founded by the German government and strives to promote exchange of knowledge between scientists and scholars all over the world.

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Call for Undergraduate Individual Study (2016-2017)

 

The SJRC will host up to 4 Individual Study students to collaborate on research papers and proposals as well as Center events and programming for the academic year. Students can also work on senior thesis projects related to Center Themes (Genomics, Data Justice, Climate Justice) and/or assist SJRC Graduate Training Program Fellows in planning and organizing events. The Individual Study course, can range from 2-5 units, be independent or group and will include directed readings, guided independent and collaborative research and project planning.

Interested in the Intersections of Science and Justice?

Want to Develop Collaborative Research or Public Events?  

 

Available Fall 2016

Just Data – assist in editing and analyzing transcripts from the Just Data meeting.

Diversity and Equity in STEM – assist with research on current individual and institutional leaders, model programs within the UC system and beyond, conduct a literature review on best practices, available curricula or training modules, assist with conducting informational interviews with key institutional leaders in the field

Third Street Project – assist with research on current community organizations and past story-telling or history exhibits in Bay View Hunter’s Point, conduct historical research on key buildings and institutions along the Third St. corridor (e.g. Genentech Hall, UCSF Mission Bay Complex, Illumina, Bay View Opera House, South East Health Clinic, New Generations Clinic, Building 80 at SFGH), assist in developing interview protocol and media release for digital story-telling and photo-voice project, conduct research on the history of labor relations at UCSF and UC Medical Centers, assist in creating a web-presence for the Third St. Collaborative.

 

Available Winter / Spring 2017

Fair Healthcare Pricing Project – help with assembling a literature review on healthcare pricing, financial literacy and medical debt in the U.S., conduct historical research on the Orphan Drug Act, assist in developing a pilot interview-based research protocol.

Find ways undergraduates can get involved in Science and Justice research. Apply no later than the Monday of Week 1 and email a writing sample to scijust@ucsc.edu.

Just Science | SJRC interviewed in Inquiry Research Magazine

The Science & Justice Research Center and it’s Training Program Fellows were interviewed by UC Inquiry@ a research magazine published by the UC Santa Cruz Office of Research for its inaugural 2015-2016 issue.

Read the 2015-16 Inquiry Research Magazine to find out more about Fellow Gene Felice’s Ocean Scales exhibit on page 8; Affiliate Beth Shapiro’s work on ancient DNA on page 10; the SJRC and its Training Program on pages 19-21.