Book cover for Can precision medicine be personal; can personalized medicine be precise? (2022)

Book Release! Can precision medicine be personal; can personalized medicine be precise? (Oxford University Press, 2022)

About the Book

Can precision medicine be personal; can personalized medicine be precise? (2022)

People have always sought medical care that is tailored to every individual patient. Alongside with the historical development of institutions of care, the vision of personal and ‘holistic’ care persisted. Patient-centred medicine, interpersonal communication and shared decision making have become central to medical practice and services.

This evolving vision of ‘personalized medicine’ is in the forefront of medicine, creating debates among ethicists, philosophers and sociologists of medicine about the nature of disease and the definition of wellness, the impact on the daily life of patients, as well as its implications on low-income countries. Is increased ‘precision’ also an improvement on the personal aspects of care or erosion of privacy? Do ‘precise’ and ‘personalized’ approach marginalize public health, and can this care be personalized without attention to culture, economy and society?

The book provides a multidisciplinary and interdisciplinary discussion of the ethos and ethics of precision/personal medicine, involving scientists who have shaped the field, in dialogue with ethicists, social scientists and philosophers of science. The contributing scholars come from all over the world and from different cultural backgrounds providing reflective perspectives of history of ideas, critical theory and technology assessment, together with the actual work done by pioneers in the field. It explores issues such as global justice, gender, public health, pharmaceutical industry, international law and religion, and explores themes discussed in relation to personalized medicine such as new-born screening and disorders of consciousness.

This book will be of interest to academicians in bioethics, history of medicine, social sciences of medicine as well as general educated readers.

About the Authors

Edited by Y. Michael Barilan, Margherita Brusa, and Aaron Ciechanover with contribution by Professor of Sociology and SJRC Founding Director Jenny Reardon from their participation in the workshop, “The Revolution of Personalized Medicine: Are We Going to Cure All Diseases and at What Price?,” that took place April 8-9, 2019 in Vatican City.

Read more in this campus news article: Jenny Reardon participates in Vatican workshop on personalized medicine.

Book launch! Poetic Operations: Trans of Color Art in Digital Media by micha cárdenas

About the Book

Poetic Operations: Trans of Color Art in Digital Media (Duke University
Press, 2021)

In Poetic Operations artist and theorist micha cárdenas considers contemporary digital media, artwork, and poetry in order to articulate trans of color strategies for safety and survival. Drawing on decolonial theory, women of color feminism, media theory, and queer of color critique, cárdenas develops a method she calls algorithmic analysis. Understanding algorithms as sets of instructions designed to perform specific tasks (like a recipe), she breaks them into their component parts, called operations. By focusing on these operations, cárdenas identifies how trans and gender-non-conforming artists, especially artists of color, rewrite algorithms to counter violence and develop strategies for liberation. In her analyses of Giuseppe Campuzano’s holographic art, Esdras Parra’s and Kai Cheng Thom’s poetry, Mattie Brice’s digital games, Janelle Monáe’s music videos, and her own artistic practice, cárdenas shows how algorithmic analysis provides new modes of understanding the complex processes of identity and oppression and the intersection of gender, sexuality, and race.

The book is available as a Kindle Edition on Amazon. Other formats available soon at https://www.dukeupress.edu/poetic-operations

About the Author

micha cárdenas is Assistant Professor of Performance, Play and Design, and Critical Race and Ethnic Studies at the University of California, Santa Cruz, as well as coauthor of Trans Desire / Affective Cyborgs and The Transreal: Political Aesthetics of Crossing Realities.

Mellon Foundation Humanities Grant To Investigate Race, Empire, and the Environments of Biomedicine

Thanks to a generous grant from The Andrew W. Mellon Foundation, faculty and students at UC Santa Cruz will have a chance to critically investigate the relationships among medicine, race, and the environment both in the United States and in other regions of the globe shaped by the influence of American medicine.

The $225,000 award will support “Race, Empire, and the Environments of Biomedicine,” a Sawyer Seminar on the Comparative Study of Culture, that, starting in Fall 2022, will bring scientists, physicians, and scholars of the humanities and social sciences together with students and members of the UC Santa Cruz community for a series of public lectures, reading groups, and research fellowships at the graduate and postdoctoral levels.

The effort is led by S&J affiliated faculty Jennifer Derr, associate professor of history, the founding director of the Center for the Middle East and North Africa and Jenny Reardon, professor of sociology, the founding director of the Science and Justice Research Center.

Learn more in this campus news article: UC Santa Cruz receives Mellon Foundation humanities grant to investigate race, biomedicine

Call for Participation

Prospective Student Opportunity | history of science, medicine, environment in the Global South

The Department of History at UC Santa Cruz is recruiting two PhD students to begin in the fall of 2022 to pursue research on the histories of science, medicine, and/or the environment in the Global South. Applicants may specialize in the study of the Middle East and North Africa, Latin America, the Caribbean, South Asia, East Asia, or indigenous communities across the globe. Applicants may – but need not be – from the geographies that fall within the broad category of the Global South as long as their research agenda is focused on the geographies described.

UCSC is known for its reputation as a center for the study of science (e.g. feminist science studies, multispecies studies, the study of race and genomics). The successful applicant will become part of an interdisciplinary community of scholars whose work focuses on questions of science, medicine, and the environment. In pursuing a research agenda situated in the Global South, they will have the opportunity to join researchers across the university and to participate in various transdisciplinary forums that include the Science and Justice Research group, the Center for Cultural Studies, the program in Global and Community Health, the Center for Southeast Asian Coastal Interactions, and events sponsored by the Departments of Politics, Sociology, History of Consciousness, Feminist Studies, Anthropology, and Critical Race and Ethnic Studies. In addition to university support, successful applicants will receive funding for language training and research from a CAREER grant from the National Science Foundation on the theme of “The History of Science at the Interface of Biomedical and Environmental Concerns,” whose Principal Investigator is Jennifer L. Derr (History).

Further information about the history department’s graduate program can be found on their web page (https://history.ucsc.edu/graduate/index.html).

Please contact Jennifer L. Derr (jderr@ucsc.edu) or the Graduate Program Coordinator for the Department of History, Cindy Morris (morrisc@ucsc.edu) with any questions regarding applying or the graduate program.

Applications must be submitted no later than December 11, 2021.

Book release! Life as We Made It How 50,000 Years of Human Innovation Refined—and Redefined—Nature (Basic Books 2021)

About the Book

From the first dog to the first beefalo, from farming to CRISPR, the human history of remaking nature

Life as We Made It: How 50,000 Years of Human Innovation Refined—and Redefined—Nature (Basic Books, 2021)

When the 2020 Nobel Prize was awarded to the inventors of CRISPR, the revolutionary gene-editing tool, it underlined our amazing and apparently novel powers to alter nature. But as biologist Beth Shapiro argues in Life as We Made It, this phenomenon isn’t new. Humans have been reshaping the world around us for ages, from early dogs to modern bacteria modified to pump out insulin. Indeed, she claims, reshaping nature—resetting the course of evolution, ours and others’—is the essence of what our species does.

In exploring our evolutionary and cultural history, Shapiro finds a course for the future. If we have always been changing nature to help us survive and thrive, then we need to avoid naive arguments about how we might destroy it with our meddling, and instead ask how we can meddle better.

Brilliant and insightful, Life as We Made It is an essential book for the decades to come.

Learn more in this campus news article: https://news.ucsc.edu/2021/10/shapiro-book.html

Beth Shapiro is a professor of Ecology & Evolutionary Biology, PI of the UCSC Paleogenomics Lab, and an affiliate of the Science & Justice Research Center.

Call for Participation

Fall 2021 Undergraduate Student Researcher Opportunity

The Science & Justice Research Center is pleased to announce we are now accepting applications for a:

Undergraduate Individual Study

The Science & Justice Research Center (SJRC) invites undergraduate students to join a cohort of researchers for the  Fall 2021 term. The Individual Study can range from 2-5 units and are part of a group. Independently, students can also work on senior thesis projects in areas related to Center themes (ie: forensic genomics, queer ecology, CRISPR, data privacy and biosurveillance, health care disparities and incarceration, the future of public goods, artificial intelligence and ethics, reproducibility and diversity in research).

SJRC student researchers help inform collaborative research, contribute to co-authored developing blogs, podcasts, and websites, opinion pieces, papers and proposals as well as help design Center programming. Students may track, collect, and organize articles from prominent theorists of race, inequality, and science and technology studies to continue our study of the social, political, and economic dimensions of the COVID-19 pandemic. More specifically, opportunities include: working with a current cohort of students, staff and faculty affiliates to continue work in progress, conduct interviews and prepare transcriptions, edit interviews, create outreach materials sharing findings of research activities with the broader public (ie: writing blogposts, articles or reports, creating infographics, podcast episodes, animations, illustrations, interactive documentary websites, etc.).

Those interested in broadcast journalism, social documentation, digital and online student and public engagement via blogs, podcasts and additional mediums (ie: animations, soundscapes, illustrations, etc.) and promotion methods (ie: social media, charts, graphics, photographs, maps, other new or historical oral and written materials) are especially encouraged to apply.

 

Available Fall 2021

Incarcerated Care – up to 4 students will work directly with Film and Digital Media Professor Sharon Daniel’s team of researchers to expand the Unjustly Exposed interactive documentary website on COVID-19 in prisons and jails. Learn more: Unjustly Exposed, Public Art and Carcerality.

To Apply:

By Tuesday, October 12 at 12 noon, students should email (scijust@ucsc.edu) with their resume/CV to express interest. We’re excited to learn about you, teach you what we’ve learned from each other, and incorporate your ideas! Please let us know the following:

  1. your name, major(s), any faculty advisors.
  2. any experiences with related items, why you are interested in being involved and how your curriculum, research, or career goals would benefit from the internship.
  3. propose any ideas or intended outcomes you would be interested in completing over Fall 2021, including your preferred methods and mediums.

Theorizing Race After Race: Metrics, Enumeration, and the Politics of Knowledge in Estimating Racial Health Disparities in the COVID-19 Pandemic

The second installment of a series of dialogues on COVID-19 and Racism of the SJRC’s Theorizing Race After Race (TRAR) Collective is now live on the UCHRI Foundry website! Check out “Metrics, Enumeration, and the Politics of Knowledge in Estimating Racial Health Disparities in the COVID-19 Pandemic: A Dialogue with Alexis Madrigal, Co-Founder of The Atlantic’s COVID Tracking Project.”

This dialogue follows the first in the series entitled “Black Geographies of Quarantine.” In this dialogue, SJRC affiliate faculty and Assistant Professor of Sociology Jaimie Morse, with Film & Digital Media graduate student Dorothy Santos, and UCSC undergraduate student alum Aitanna Parker (as part of the TRAR Collective) are in dialogue with Alexis Madrigal, journalist and co-founder of The Atlantic’s COVID Tracking Project that operated from April 2020 to March 2021. The Atlantic is a major media outlet that produced alternative statistics on COVID infections, hospitalizations, and deaths during the first year of the pandemic, acting as a watchdog on the federal government’s data and reporting. The Atlantic was among the first media outlets to report racial health disparities through its COVID Racial Data Tracker before the CDC released data by race. In this dialogue with Alexis Madrigal, we explore the politics of knowledge production and how data can advance racial justice. What follows is an edited, condensed transcript of the dialogue.

Contributors

Alexis Madrigal is a journalist. He is a staff writer at The Atlantic and co-founder of The COVID Tracking Project. He has been a visiting scholar at the University of California, Berkeley’s Information School and the Center for the Study of Technology, Science, and Medicine. He is an affiliate with Harvard’s Berkman Klein Center for Internet & Society. He is the author of Powering the Dream: The History and Promise of Green Technology.

Jaimie Morse is an Assistant Professor of Sociology at the University of California, Santa Cruz, and a Senior Visiting Fellow with the Global Health Justice Partnership at Yale University. She studies knowledge, technology, and policy in biomedicine and public health, with a focus on the interplay of law, health, and human rights in processes of policy change.

Aitanna Parker is a recent graduate of UC Santa Cruz, with a BA in Critical Race and Ethnic Studies and a BS in Technology and Information Management. She plans to use her technical abilities for social good. Aitanna is a former fellow at the Science & Justice Research Center, looking at datasets to understand how Covid is negatively impacting racialized populations in the United States. She furthers her study at Lund University pursuing a Masters in Information Systems.

Dorothy R. Santos is pursuing her Ph.D in Film & Digital Media at the University of California, Santa Cruz with a designated emphasis on Computational Media. Her dissertation project examines voice recognition and assistive technologies through the lens of feminist media histories, critical medical anthropology, tech, race, and ethics.

Book release! Assuming the Ecosexual Position: The Earth as Lover (University of Minnesota Press, 2021)

About the Book

Assuming the Ecosexual Position: The Earth as Lover (University of Minnesota Press, 2021)

The story of the artistic collaboration between the originators of the ecosex movement, their diverse communities, and the Earth

In 2008, Annie Sprinkle and Beth Stephens married the Earth, which set them on the path to explore the realms of ecosexuality. Assuming the Ecosexual Position: The Earth as Lover (University of Minnesota Press, 2021) describes how the two came together as lovers and collaborators, how they took a stand against homophobia and xenophobia, and how this union led to the miraculous conception of the Love Art Laboratory.

What’s sexy about saving the planet? Funny you should ask. Because that is precisely—or, perhaps, broadly—what Annie Sprinkle and Beth Stephens have spent many years bringing to light in their live art, exhibitions, and films. In 2008, Sprinkle and Stephens married the Earth, which set them on the path to explore the realms of ecosexuality as they became lovers with the Earth and made their mutual pleasure an embodied expression of passion for the environment. Ever since, they have been not just pushing but obliterating the boundaries circumscribing biology and ecology, creating ecosexual art in their performance of an environmentalism that is feminist, queer, sensual, sexual, posthuman, materialist, exuberant, and steeped in humor.

Assuming the Ecosexual Position tells of childhood moments that pointed to a future of ecosexuality—for Annie, in her family swimming pool in Los Angeles; for Beth, savoring forbidden tomatoes from the vine on her grandparents’ Appalachian farm. The book describes how the two came together as lovers and collaborators, how they took a stand against homophobia and xenophobia, and how this union led to the miraculous conception of the Love Art Laboratory, which involved influential performance artists Linda M. Montano, Guillermo Gómez-Peña, and feminist pornographer Madison Young. Stephens and Sprinkle share the process of making interactive performance art, including the Chemo Fashion Show, Cuddle, Sidewalk Sex Clinics, and Ecosex Walking Tours. Over the years, they celebrated many more weddings to various nature entities, from the Appalachian Mountains to the Adriatic Sea. To create these weddings, they collaborated with hundreds of people and invited thousands of guests as they vowed to love, honor, and cherish the many elements of the Earth.

As entertaining as it is deeply serious, and arriving at a perilous time of sharp differences and constricting categories, the story of this artistic collaboration between Sprinkle, Stephens, their diverse communities, and the Earth opens gender and sexuality, art and environmentalism, to the infinite possibilities and promise of love.

Assuming the Ecosexual Position is available for purchase here with a 40% discount (using code MN88300) through December 1, 2021, as part of the National Women’s Studies Association conference sale.

Select Reviews

Tuned to the more than human, Annie Sprinkle and Beth Stephens have married widely and well, mating with the airs, waters, and places of Earth, inviting their companions into profligate kinning for earthly survival. They have taken me on their ecosexual journeys, rolling around with them on their theoretical and performative ground to get sufficiently soiled to be brave enough to join the old whore and the hillbilly in their radical practices of joy, love, and rage. Read this book, revel in its wacky seriousness, risk its call to transformative art and life.

— Donna Haraway, author of Staying with the Trouble: Making Kin in the Chthulucene

In Assuming the Ecosexual Position, Annie Sprinkle and Beth Stephens dance with diverse thinkers across theoretical, artistic, and planetary ground in their polyamorous love of the natural world. Sex can heal, and ecosexuality—taking the Earth as lover—is curative. Ecosexual art, activism, and other intimacies help quell society’s anthropocentric hierarchy so we might better nurture all of our relatives, both human and more-than-human.

— Kim TallBear, author of Native American DNA: Tribal Belonging and the False Promise of Genetic Science

About the Authors

Annie Sprinkle and Beth Stephens have been life partners and 50/50 collaborators on multimedia projects since 2002. They are authors of the Ecosex Manifesto and producers of the award-winning film Goodbye Gauley Mountain and Water Makes Us Wet, a documentary feature that premiered at documenta 14 and screened at MoMA in New York. Sprinkle is a former sex worker with a PhD in human sexuality. Stephens holds a PhD in performance studies and is founding director of E.A.R.T.H. Lab at University of California at Santa Cruz.

Jennie Klein is professor of art history at Ohio University. She is editor of Letters from Linda M. Montano and coeditor of Histories and Practices of Live Art and The M Word: Real Mothers in Contemporary Art.

Una Chaudhuri is Collegiate Professor and professor of English, drama, and environmental studies at New York University. She is coeditor of Animal Acts: Performing Species Today and coauthor of Ecocide: Research Theatre and Climate Change.

Paul B. Preciado is a philosopher and curator. His books include Testo Junkie: Sex, Drugs, and Biopolitics in the Pharmacopornographic Era and Countersexual Manifesto.

Book Release! Seeing Silicon Valley: Life inside a Fraying America (University of Chicago Press, 2021)

About the Book

Seeing Silicon Valley: Life inside a Fraying America (University of Chicago Press, 2021)

Acclaimed photographer Mary Beth Meehan and Silicon Valley culture expert and SJRC affiliated faculty Fred Turner join forces to give us an unseen view of the heart of the tech world in their new book Seeing Silicon Valley: Life inside a Fraying America (University of Chicago Press, 2021).

It’s hard to imagine a place more central to American mythology today than Silicon Valley. To outsiders, the region glitters with the promise of extraordinary wealth and innovation. But behind this image lies another Silicon Valley, one segregated by race, class, and nationality in complex and contradictory ways. Its beautiful landscape lies atop underground streams of pollutants left behind by decades of technological innovation, and while its billionaires live in compounds, surrounded by redwood trees and security fences, its service workers live in their cars.

With arresting photography and intimate stories, Seeing Silicon Valley makes this hidden world visible. Instead of young entrepreneurs striving for efficiency in minimalist corporate campuses, we see portraits of struggle—families displaced by an impossible real estate market, workers striving for a living wage, and communities harmed by environmental degradation. If the fate of Silicon Valley is the fate of America—as so many of its boosters claim—then this book gives us an unvarnished look into the future.

The book is available from the University of Chicago Press at: https://press.uchicago.edu/ucp/books/book/chicago/S/bo90479007.html

About the Author and Photographer

Mary Beth Meehan is a photographer known for her large-scale, community-based portraiture centered around questions of representation, visibility, and social equity in the United States. She lives in New England, where she has lectured at Brown University, Rhode Island School of Design, and Massachusetts College of Art and Design.

Fred Turner is Harry and Norman Chandler Professor of Communication at Stanford University.

book

Normalizing Slow Science

The pace of scientific research increases by the year, and the COVID-19 pandemic has further accelerated this trend. The global rate of published peer-reviewed science and engineering journal articles showed a 4% annual increase from 2008 to 2018 (White 2019). The National Science Board found that Science and Engineering publications grew from 1.8 million to 2.6 million articles in ten years (White 2019). In 2020, from February to May, the publishing company Elsevier observed a 98% increase in journal articles listed under health and medicine (Else 2020). In response to an extraordinary health crisis, COVID-19 has taken over research publishing in recent years. However, both in the quest to understand and manage the extraordinary circumstances of a global pandemic and in scientific research more broadly, the demand for swift scientific innovation has shown to be problematic and even dangerous.

The increasing speed of scientific research happens within a broader global context in which many different forms of production must accelerate in order to compete. The association between time and money is an essential feature of this acceleration. Barbara Adam, a Social Theory professor at Cardiff University, coined “speed fetishism” to describe the commodification of time to encourage production speed (2001). As she puts it, “speed becomes an absolute and unassailable imperative for business” (Adam 2001). Adam problematizes the sale, exchange, and control of time by explaining how global innovation competition has caused a degradation of fair wages and working conditions. The phrase “time is money” is more than an empty cliche; it is institutionalized in business models that value quantity over quality. Corporations respond to economic incentives to accelerate production.

Academic research is not exempt from pressures to accelerate in the face of global competition. Ruth Müller, an Assistant Professor of Science & Technology Policy at the Munich Center for Technology in Society, argues that researchers increasingly work under time-limited pressures, creating a “culture of speed” in academia (Müller 2015).  Her article “A Culture of Speed: Anticipation, Acceleration and Individualization in Academic Science” (2015), examines the implications of accelerated science. The forces driving the acceleration of research, such as global competition, money, and demand for information, often prevent well-thought-out science. Time for slow thought and reflection is neglected in rushed research, often resulting in a lack of transparency in the scientific development sector. Müller (2015) explains the two modes that the culture of speed in academia works in; anticipatory acceleration and latent individualization. She describes anticipatory acceleration as an effect of time-limited pressures and aims to make the future and competition more controllable. Researchers work in a mode of anticipatory acceleration when they seek to “optimize” their work, for example, by increasing research output. Müller states that this mode creates “emotional dependency on and investment in academic success.” Müller defines the second mode, latent individualization, as researchers’ interest in making decisions  to ensure their “future scholarly survival” (Müller 2015). Academia’s metric-oriented nature demands high research turnover, yet it is unclear whether the pace of science research is motivated in the interest of public well-being or individual academic goals.

Taking more time in research opposes the culture of speed and the inclination towards fast solutions, and decelerating research could enable beneficial developments in science. Müller identifies “slow science” as a “counterculture to the current fast-paced, metric-oriented research worlds” (Müller 2015: n.p.) we might call “fast science.” Müller states that the desire for academic success complicates genuine motivations when the metric-based acceleration culture integrates the research sector. For this reason, Müller questions who benefits from fast science. The drive for academic success benefits discrete careers and research publishers’ financial growth. Yet, the pursuit of swift innovation to address public well-being and thoughtful scientific advancement remains questionable. The rise of the Slow Science Movement has pushed for academic researchers to take more time for thinking and digesting before publishing studies (The Slow Science Academy 2010). As The Slow Science Academy states in their attention-grabbing “Slow Science Manifesto,” “science develops unsteadily, with jerky moves and unpredictable leaps forward—at the same time, however, it creeps about on a very slow time scale, for which there must be room and to which justice must be done.” The group advocates for patient research development, including “fostering more dialogue between the humanities and natural sciences” (The Slow Science Academy 2010).

As an intern under UCSC’s Science & Justice Research Center “Orphan Drugs” team, I got a first-hand look into obstacles to this kind of interdisciplinary dialogue and to challenge the pace and scope of considerations within scientific research. Collaboration of researchers in molecular biology, biochemistry, and social science revealed how time is assigned different values depending on perspective. It was an intriguing challenge to find a middle ground; in general, scientists were urgent to pursue the research they believed in. Others wanted to take more time to explore the potential ethical dimensions. In the discussion of “slow science” and “fast science,” it is important to establish “slow” and “fast” as relative terms. For instance, “slow” research can be interpreted as careful, well-thought-out, and mindful work, yet science researchers may feel as though ethical consideration slows research publication. Deliberation between “clashing” disciplines is an excellent step to challenge expectations of research pace. I learned that time is never just time; time is a resource that is spent according to one’s values. Researchers will inevitably have different interpretations of what “slow science” and “fast science” look like. In my perspective, “slow science” foregrounds the dissemination of scientific research in the interest of public well-being. Less likely to undermine public trust, social and ethical considerations are necessary to develop sound research. As sound scientific research should benefit the broader public, it is up to the researcher to determine the pace that will yield reputable work.

While different researchers and disciplines may have different expectations for the pace of scientific research, rushed projects are more likely to face criticism and undermine public trust. John Horgan is an American science journalist known for his critiques on scientific works. In Horgan’s Scientific American article titled “The ‘Slow Science’ movement must be crushed!” he provides a unique perspective on the emergence of slow science. While he applauds the push for scientists to take more time in their research, Horgan worries that careful consideration of scientific findings will leave him with no critiquing material. In a sarcastic tone, Horgan writes, “I fear that, if scientists really slow down, and start publishing only high-quality data and theories that have been double and triple-checked, I won’t have anything left to write about.” While Horgan’s statement is satirical, it allows us to consider outside factors that are indirectly tolerant of fast innovation. However, the COVID-19 pandemic reveals the severe effects of rushed science, calling medical journalists like Horgan (2011) to address extreme cases where “bad” science affects public well-being.

Amidst the COVID-19 pandemic, scientists must provide an understanding of the disease backed by extensive evidence to prevent public unrest. Having patience in research is especially difficult when faced with economic, health, and social pressures. However, everyone must do their part in the tolerance for well-thought-out science.  In extraordinary cases like a global pandemic, swift research practices become problematic and even life-threatening. The demand for information on the COVID-19 disease shows the negative impacts of fast science at the individual and social level. The research sectors’ response to COVID-19 revealed the weakness of the accelerated scientific enterprise (Yong 2021). Yong (2021) states, “Flawed research made the pandemic more confusing, influencing misguided policies.” Misinformed conclusions of COVID-19 detection, spread, and transmission created a political discourse that failed to provide a consensus, resulting in a prolonged fight against the disease. COVID-19 revealed the importance of corrective research and brought light to widespread self-interest in the world of science research at the cost of transparency (Yong 2021).

More careful, slow science could be valuable even in urgent, time-sensitive situations like the COVID-19 pandemic. As of July 2021, more than 6000,000 people have died from coronavirus in the US alone (CDC 2021), and it’s common to assume the high death toll has resulted from slow research. Herper (2020), a medical journalist with STAT, says, “more people will die from COVID-19 because we cannot study drugs more quickly.” However, Herper goes on to say, “This does not mean that it would be better to provide people with unproven therapies—or that COVID-19 studies should be accelerated so fast that we draw the wrong conclusions or put people at risk.” While COVID-19 research is much needed at this time, we also need consistent action on established basic public health and pandemic safety measures. Additionally, the pressure for information on COVID-19 may weaken or delay helpful information. The Los Angeles Times article “How coronavirus is revealing the problems with ‘fast science’” (2020) delves into the repercussions of premature coronavirus findings and explores the dangers of evolving advice from COVID-19 researchers. The demand for scientific progress to understand the transmission and treatment of COVID-19 has created the release of information that isn’t always backed by evidence. Premature statements are taken as facts of the disease, and citizens don’t know what to believe anymore. During these extraordinary times, researchers must develop carefully considered findings before bringing them to the public. It’s easier said than done to be patient during a deadly pandemic, but slower research has the potential to give us the information we need to keep ourselves and others safe.

While the Slow Science Movement has raised concerns about “fast science,” they assume the same need for more scientific research. The Slow Science movement is characterized by the time-process of research rather than how scientific research is conducted. However, a lot of what we needed to know to address and prevent pandemics was known before COVID-19; quarantine, physical distancing, mask wearing, and personal hygiene were all standard public health practices during the 1918 influenza pandemic (Tomes 2010). Alongside the slow science movement, we may need a “learn science” movement that affirms a  comprehensive understanding of the application and impacts of existing scientific research to transform the individual, social, and political consensus of COVID-19. The acceleration of scientific research spurred by COVID-19 raises concerns that people will act on hastily conducted and prematurely publicized research. For example, a 2020 study that circulated prior to peer review on the preprint depository MedRxiv fueled political narratives that coronavirus was overblown, causing people to not take public health practices seriously (Lee 2020). A whistleblower later revealed that JetBlue founder David Neelman had financed and supported the study, creating concerns over a conflict of interest. The Slow Science Movement and greater research transparency open the path for public trust in science, and allows individuals to integrate and advocate for health precautions backed by extensive scientific evidence alongside the transparency of political, social, and economic obstacles.

Aisha Lakshman, a Kresge affiliate, is a third year Sociology undergraduate. Aisha is also pursuing a minor in statistics. She plans on using these two disciplines to interpret datasets to demonstrate social problems and catalyze social change.

References

Adam, Barbara. 2001. “When Time is Money: Contested Rationalities of Time and Challenges to the Theory and Practice of Work.” Cardiff University, School of Social Sciences. Retrieved April 26, 2021 (https://citeseerx.ist.psu.edu/viewdoc/download?doi=10.1.1.198.21&rep=rep1&type=pdf).

Centers for Disease Control and Prevention (CDC). 2021. “CDC COVID Data Tracker.” CDC.gov. Retrieved July 5, 2021 (https://covid.cdc.gov/covid-data-tracker/#cases_casesper100klast7days).

Else, Holly. 2020. “How a torrent of COVID science changed research publishing- in seven charts”. Nature. Retrieved April 4, 2021 (https://www.nature.com/articles/d41586-020-03564-y).

Herper, Matthew. 2020. “People are dying from coronavirus because we’re not fast enough at clinical research.” STAT. Retrieved March 16, 2021 (https://www.statnews.com/2020/04/22/people-are-dying-from-coronavirus-because-were-not-fast-enough-at-clinical-research/).

Horgan, John. 2011. “The “Slow Science” Movement Must Be Crushed!” Scientific American. Retrieved March 9, 2021 (https://blogs.scientificamerican.com/cross-check/the-slow-science-movement-must-be-crushed/)

Lee, Stephanie M. 2020. “JetBlue’s Founder Helped Fund A Stanford Study That Said The Coronavirus Wasn’t That Deadly.” Buzzfeed News. Retrieved July 18, 2020.  https://www.buzzfeednews.com/article/stephaniemlee/stanford-coronavirus-neeleman-ioannidis-whistleblower

Müller, Ruth. 2015. “A Culture of Speed: Anticipation, Acceleration and Individualization in Academic Science.” LSE Impact of Social Sciences. Retrieved March 1, 2021 (https://blogs.lse.ac.uk/impactofsocialsciences/2016/05/11/a-culture-of-speed-anticipation-acceleration-and-individualization-in-academic-science/).

The Slow Science Academy. 2010. “THE SLOW SCIENCE MANIFESTO.” The Slow Science Academy. Retrieved March 1, 2021 (http://slow-science.org/).

The Times Editorial Board. 2020. “How coronavirus is revealing the problems with ‘fast science.’” Los Angeles Times. Retrieved March 9, 2021 (https://www.latimes.com/opinion/story/2020-05-26/coronavirus-research-studies-confusion).

Tomes, Nancy. 2010. “‘Destroyer and Teacher’: Managing the Masses During the 1918–1919 Influenza Pandemic.” Public Health Reports 125 (Suppl 3): 48-62.

White, Karen. 2019. “Publications Output: U.S. Trends and International Comparisons.” NSF- National Science Foundation. Retrieved April 4, 2021 (https://ncses.nsf.gov/pubs/nsb20206/).

Yong, Ed. 2021. “How Science Beat the Virus.” The Atlantic. Retrieved April 4, 2021 (https://www.theatlantic.com/magazine/archive/2021/01/science-covid-19-manhattan-project/617262/).